Blogging about trying to find my way through an Extremely Rare "Childhood Cancer-Like Condition" Sharing my experiences with caregiving with my 85yr old Father-in-Law. And finding an inner peace...all at the same time
Saturday, February 25, 2012
Sunday, February 19, 2012
Pretty, fresh snow
It was so peaceful watching it snow.My visiting teacher came to visit me, and gave me a Healing Blessing. It left me feeling a profound sense of peace. Some my inner turmoil, he mentioned while he was praying. I felt The Lord is carrying me through all this Medical stuff. And it helps.
Thursday, February 16, 2012
lots of medical tests
This past week I have been to numerous appointments with my "regular Drs" and have been having a lot of tests ran to prepare for a clinical trial that I have accepted to participate in, I will be treated at John Hopkins University Hospital. I have had to advocate for myself to receive this treatment. It is so rare, it has been almost a year to get everything coordinated so I would have a chance.
I am excited to be a part of this trial. I have always believed in research for rare conditions, but I never dreamed I would end up with such a crazy, unpredictable Cancer-Like condition.
I am excited to be a part of this trial. I have always believed in research for rare conditions, but I never dreamed I would end up with such a crazy, unpredictable Cancer-Like condition.
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